Ok, for those of you who have been asking, yes, I saw the specialist again on Monday for my three month 5, 000k check up.
Red blood count is almost normal after nearly two years skating right on the line between “immediate transfusion” and “let’s give it another 30 days, and hope you don’t die in the meantime”.
All the different toxins from the meds are also down, which means kidneys are functioning pretty close to normally.
Still bruising like a grape, but have been given the go ahead to drop the Immuran dose by a third which should help.
There is nothing anyone can do about the joint pain. That’s just life.
After the last couple of years, I’ll take it.
I’m doing SO well, in fact, that outside of having bloodwork each month, I don’t have to see anyone again until JULY!!!!
I feel like I’ve been let off my leash for the first time in ages.
Woohoo!!!! So happy to hear that!
That’s fantastic! Yay!
Note to self: Don’t read this LJ while eating soup. Stuff like “”let’s give it another 30 days, and hope you don’t die in the meantime”, where you manage to be very funny about very serious stuff, causes cream of mushroom to end up on my monitor.
Wild- keep me updated. I’m going to a rheumatologist in NOVEMBER (takes that long for a referral!) and I’m sure he’ll want family history info.