Ok, for those of you who have been asking, yes, I saw the specialist again on Monday for my three month 5, 000k check up.
Red blood count is almost normal after nearly two years skating right on the line between “immediate transfusion” and “let’s give it another 30 days, and hope you don’t die in the meantime”.
All the different toxins from the meds are also down, which means kidneys are functioning pretty close to normally.
Still bruising like a grape, but have been given the go ahead to drop the Immuran dose by a third which should help.
There is nothing anyone can do about the joint pain. That’s just life.
After the last couple of years, I’ll take it.
I’m doing SO well, in fact, that outside of having bloodwork each month, I don’t have to see anyone again until JULY!!!!
I feel like I’ve been let off my leash for the first time in ages.